The last few days have been, well...they have been. By Wednesday morning she was choking on every drink of water and not eating. Today, Thursday, we are staying away from liquids all together, as her risk of aspirating the water into her lungs is quite high. Yesterday, she had a bite of pasta and today she had some applesauce!

Danielle has also is bedridden now. But has developed the restlessness that come in the last few days. She is now getting a dose of Lorazepam every 4 hours. This helps to keep seizures at bay and keep her calm and able to rest.

I feel like there is much more to tell. And a better way to tell what I did....but today has just been a very tiring day, in several ways. I promise to be better next time ;-)